Impatient Patients: How Disease Organizations Are Accelerating Research
Wednesday, May 1, 2013 / 11:15 am - 12:15 pm
 
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Moderators
Margaret Anderson, Executive Director, FasterCures

Speakers
Debra Black, Co-Founder and Chair, Melanoma Research Alliance
Louis DeGennaro, Executive Vice President and Chief Mission Officer, Leukemia & Lymphoma Society
Gordon Gund, Co-Founder and Chairman, Foundation Fighting Blindness
Jonathan Simons, President and CEO, Prostate Cancer Foundation; Senior Fellow, Milken Institute
John Walsh, Co-Founder, President and CEO, Alpha-1 Foundation

TRAIN, The Research Acceleration and Innovation Network of FasterCures, has worked for the past decade to speed medical advances by connecting more than 50 disease-specific organizations and sharing their best practices. This is lifting barriers to progress in a system where it takes an average of 15 years to translate laboratory breakthroughs into therapies - an eternity to patients with life-threatening diseases and to their families. Disease organizations represent a small fraction of overall medical research spending but play an outsize role in fostering innovative R&D models and supporting high-risk/high-reward research often abandoned by government and industry. Join FasterCures Executive Director Margaret Anderson and TRAIN members as they discuss the enormous power patients have when they work together to accelerate and transform medical research.